Weekend Edit: We Built Systems To Prolong Life But Are Afraid To Ease Death? Real Life Cases Make Us Think

There are few topics as sensitive and deeply personal as death or the decision to voluntarily choose death.

In our pursuit of scientific breakthroughs, we’ve created exceptional systems to preserve and prolong human life- ventilators, ICUs, advanced palliative care, life-extending drugs but what happens when the same systems keep people trapped in suffering, inching through existence with no quality of life? Are we, as a global society, mature enough to permit people a dignified exit? The answer, drawn from legal, ethical, and deeply human perspectives, remains heartbreakingly complex.
From India to the United Kingdom, from the Netherlands to Switzerland, the debate around assisted dying reveals itself not merely as a legal question, but as one rooted in love, pain, and the human condition. Real-life cases, raw with emotion, offer a window into what it truly means to choose between extending life and easing death.
This is not just a question of laws or ethics—it is a deeply human story of love, pain, and the wrenching choices that families face behind closed doors. It’s the silent, aching moment when hope blurs with sorrow, and the desire to hold on wrestles with the longing to let go. Through the voices of those who have lived these experiences, this article explores a profound dilemma- Can the freedom to choose a dignified death be as essential as the right to live? In a world built to prolong life at all costs, are we ready to embrace the courage to ease the passage when that life nears its end?
There are forms of suffering that language cannot encapsulate—only lived experience can. My paternal uncle, once a symbol of vitality, fell victim to a severe brain stroke. Over seven long years, he transformed from a witty, robust presence to a near-vegetative shell. He didn’t die quickly, or peacefully. He shrank, physically and spiritually, as our family battled guilt, confusion, and exhaustion. The woman who was once his energetic partner, my aunt, aged visibly—her own life eroded by caregiving fatigue and emotional turmoil.
This emotional limbo is not unique. In another haunting encounter, a young woman, caring for her bedridden father, whispered through tears, “I prayed for God to take him. I couldn't watch him suffer anymore.” That moment underlines a hidden truth about when does keeping someone alive cross into prolonging their pain?
We live in an age where science and medicine have conquered so much—extending lives beyond what was once imaginable. Yet, when confronted with the unbearable truth of prolonged agony, are we truly prepared to offer the compassion to ease death itself?
These stories reveal that death is not always the enemy—sometimes, it is the gentle release people have been quietly longing for. This understanding lies at the heart of a powerful and deeply personal global conversation about euthanasia and assisted dying. While these words are often spoken as if they mean the same thing, they carry important differences in both law and morality—differences that shape how we honor dignity, choice, and compassion in the face of life’s final chapter. This perspective fuels the growing global debate on euthanasia and assisted dying. Though often used interchangeably, these terms bear crucial legal and ethical distinctions.
Euthanasia involves a medical professional actively ending a life to relieve suffering, often at the patient's request (voluntary euthanasia).
Assisted suicide refers to providing means, often medication, for a person to end their own life.
Assisted dying is a broader term, often used interchangeably with the above, but generally refers to medically assisted suicide for terminally ill patients.
Palliative sedation is the practice of deeply sedating a patient until death, without active euthanasia. Though not illegal in many countries, it remains ethically grey.
The confusion around these terms not only fuels misinformation but also clouds policy debates. As medicine advances, the ethical frameworks must keep pace.

Real Stories That Go Beyond Ethics- Towards Dignity And Choice

The story of 17-year-old Noa Pothoven from the Netherlands struck the world like a lightning bolt. Victim of severe sexual abuse, she battled PTSD, anorexia, and depression. Contrary to sensationalist media claims, Noa did not receive euthanasia. Instead, she legally chose to stop eating and drinking under medical supervision.
Her case raises a vital question- should assisted dying be extended to those with mental suffering as well? While her physicians respected her autonomy, her story reveals the limits and sensitivities of even the most progressive legal systems.
When Anthony Shackleton, a renowned British furniture restorer, was diagnosed with motor neuron disease, he chose Switzerland’s Dignitas clinic for a dignified death. His wife, Louise, stayed with him through the final moments and then returned to the UK where she turned herself in to the authorities.
“I helped him find peace,” she said. Her actions were not driven by despair but love. Her story raises a difficult question: what should be prioritized—law or compassion?
Joseph, a 28-year-old artist from the UK living in the Netherlands, recently applied for legal euthanasia due to years of severe bipolar disorder. His candid Instagram post, “I am NOT special… just tired of the pain, sparked global introspection.
Diagnosed with bipolar disorder—a mental condition that triggers savage mood swings between manic highs and depressive lows—Joseph has spent years struggling through a mental health system that, no matter how hard he tried, never provided him with lasting relief. The emotional burden of his experience weighed so heavily on him that he made the agonizing decision to seek out medically assisted death, a legal possibility in the Netherlands under strict guidelines.
In an emotional Instagram video shared in December, Joseph—his voice trembling and eyes heavy with pain—opened up to the world: "I'm Joseph, I am bipolar, and I moved to the Netherlands to legally end my life." His words cut through the screen with brutal honesty and raw vulnerability. He described how each day begins with an unbearable weight—"severe pain" that never lets up. For five long years, Joseph wrestled with this decision, carrying the emotional burden alone before finally submitting his request to the Euthanasia Expert Centre. In the Netherlands, the process can take up to four years—an intentional, rigorous timeline designed to ensure that such a decision is approached with the utmost care, gravity, and human dignity.
His story is different. It challenges the assumption that youth and mental illness must automatically exclude one from such decisions. His five-year reflection before applying speaks volumes about the deliberate nature of his choice, not desperation.

Between Healing and Relieving What Doctors Say?

The medical fraternity is itself divided. Some believe the Hippocratic Oath binds them to preserve life at all costs. Others argue that when pain—physical or emotional—surpasses what medicine can relieve, easing death becomes a form of care.
Dr. Tonmoy Sharma, a consultant psychiatrist, notes, “There’s a clear distinction between suicidal ideation born of temporary crisis and a long-standing, carefully considered decision to end life because of unbearable chronic illness. Medicine must learn to honor both realities.”
"There are few topics as sensitive and deeply personal as death or the decision to voluntarily choose death. It is something that has troubled people for generations and continues to stir debate today, largely because of the complex emotional, mental, and physical toll it can take on individuals and their loved ones. At its core, this conversation isn’t just about laws or ethics; it’s about suffering, dignity, and the deeply human need to find relief when life becomes too painful to bear," adds Dr Tonmoy.
In palliative settings, doctors often quietly practice sedation until death, a legally safer and more palatable alternative to active euthanasia. But many confess, off-record, that the moral weight is no lighter.
Dr Tonmoy further explains, "In cases of terminal physical illness or chronic, untreatable conditions, helplessness often stems from the loss of control over one's body and the erosion of dignity. These individuals are not seeking death because they feel worthless or unloved, they may have supportive families and full access to care. Rather, they seek assisted dying because the suffering is constant and unrelenting, and they wish to preserve autonomy over the remainder of their life."
Talking about the quiet suffering of the caregivers Dr Tonmoy said, "Caregivers—whether family or professionals, witness suffering up close. In many cases, it’s the person who is ill who initiates the conversation about assisted dying. Families often need time to come to terms with this decision, even when it comes from a place of clarity, not despair. For loved ones, the idea of a planned death can feel unnatural. They may struggle with guilt, sadness, or confusion, not because they don’t understand, but because letting go is never easy. Often, the person must gently convince their family, helping them see that the decision is not about giving up, but about preserving dignity."

Countries That Permit Assisted Death

Assisted dying is legal in only a handful of jurisdictions under strict conditions. In Switzerland, Belgium, the Netherlands, Canada, and parts of the United States (like Oregon and California), patients have regulated access to assisted death.
However, in India and the UK, the scenario is vastly different. In the UK, assisting someone in suicide can bring a 14-year prison sentence. Euthanasia is considered murder. Even passive acts like withdrawing treatment require court scrutiny. In India, passive euthanasia was recognized by the Supreme Court in 2018—but the procedural complexity often leaves families and doctors in ethical paralysis.
This patchwork of laws creates emotional and logistical dilemmas for families seeking to grant their loved ones a dignified death. Many, like Louise Shackleton, turn to foreign lands for peace, often at the cost of legal ramifications.
The stories of Noa, Louise and Anthony, Joseph, and countless unnamed others illuminate a moral reality modern healthcare often ignores: we have mastered the art of saving life, but continue to struggle with allowing death.
Perhaps, it’s time we reevaluate the ethics of preservation. Not every breath extended is a life saved. Sometimes, it’s a life prolonged in pain. Compassionate policy-making must recognize this uncomfortable truth.
As global conversations evolve, laws must mature with them. The challenge is not just legal reform—but societal maturity. Are we, as a world, ready to distinguish between giving up and letting go?
Until then, families will continue to suffer in silence, doctors will operate in ethical shadows, and those in pain will continue to whisper the question that haunts the edges of medicine: If I have the right to live with dignity, don’t I deserve the right to die with it too?

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